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#235640 - 07/04/08 02:53 AM What I know firsthand about "Hope"...
Liv2124 Offline
Junior Member

Registered: 08/02/06
Posts: 159
Loc: New Jersey
This doesn't pertain specifically to csa, and some of you who know me, already know where my belief in "having hope" stems from.
My 18 year old son is autistic. For the first six years of his life, he never smiled, or spoke. No "mama", "dada" ...NOTHING. I spent several thousand dollars in the first 5 years of his life, taking him from specialist to specialist, with no answers. At 5 1/2, came the last specialist who informed us that if he hadn't spoken "by now" he never would. I told myself, this wasn't gonna happen. I went home, labeled every appliance in my house, made flash cards, and started researching an experimental "Secretin" injection, only administered by an MD in New York State, that showed promise. Just before his 6th birthday, I was washing my coffee mug out in the sink, and he'd slipped quietly into the kitchen, climbed up on the chair and said, "Paul want cereal." I dropped the mug and broke it. (Saved the pieces to remind myself)
He's spoken ever since. Complete sentences. He has very flat, autistic-like speech. He can't stand to be touched. He's not great with feelings. But his veiws of the world are better than mine could ever be. He doesn't lie. As a "concrete thinker" everything is always black or white, there is no gray area. There has to be a gray area, in order to lie. He's generally happy with the world. He's not into brand names or the coolest styles, if the sneakers fit, he likes them. He readily identifies wrongdoing, and comments his views on it.
He's reliable. His only "vice" is that he shakes elastic bands as a means of self-stim. The sick thing is, one day he left them on the kitchen table, and I actually picked them up and shook them the way I've seen him do it. Just to see. Just to see if he was onto something the rest of us aren't. It didn't work.
He is why I have such a great respect for "hope". Because I believe it works, if you just believe in it and give it as much time as it needs.

#235656 - 07/04/08 04:04 AM Re: What I know firsthand about "Hope"... [Re: Liv2124]
NY Daisy Offline
New Here

Registered: 02/29/08
Posts: 183
Dear Liv, he sounds like a terrific kid, and you are obviously a great mother.
warmly, NYDAISY

#235825 - 07/04/08 10:26 PM Re: What I know firsthand about "Hope"... [Re: NY Daisy]
Trish4850 Offline
BoD Liaison Emeritus

Registered: 10/15/05
Posts: 3280
Loc: New Jersey

That is a wonderful story. Your son is a lucky boy to have such a tenacious Mom and I'll bet that despite all the hardships, you feel like a very lucky Mom.

ROCK ON........Trish

If you fall down 10 times, Stand up 11.


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